I sure love this kid. I don't write much about him. At least not as much as I do about Asher. It is hard for me to share our successes and failures with Noe on this public blog. This is sacred space in my heart. I don't want others to judge him on his limitations. I don't want others to judge me on my limitations as his mother.
I'll try now.
The past summer was pretty great with Noe. He has been smiling more than ever. I love his smile, and even when he isn't smiling, he possesses a new level of comfort around us. He wants to be near us. He doesn't hide himself in far away rooms to stim anymore. At least not nearly as often as he used to. After we have successfully communicated with each other and I start fixing the snack he has asked for, or I open a tight lid to a toy he wants, he smiles really big and does a little happy dance where he giggles, claps and jumps up and down. Probably not age appropriate, but very cute. I'm glad that as hard as communication is for him, he can find pleasure in it.
Noe is my newest running partner. He is a great partner. He likes to run in the morning, but not too early, like me. He won't get pregnant on me and quit. I don't have to hear about his financial or in-law or relationship problems. He doesn't accidentally slip and tell me that I would look "really amazing" if I just "lost those last 10 lbs." Instead, we run in perfect silence. Sometimes we hold hands. We never pass up a sprinkler or mud puddle in our path.
I love how his mind works. When I ask Noe to put his pants on after a shower, he will put on his underwear or pajama bottoms, but never both. I don't think it makes any sense to him why we wear two pant layers. When the sun got in our eyes while walking the other day, he just turned around and walked backwards. Problem solved.
As long as he is well-fed and well-rested, Noe is tons of fun. We play board games like Perfection and Jenga. He is always first out the door to hike or bike or go to the pool. He is the only one who will willingly keep me company on a trip to the grocery store. Our day-long trip to the Portland Zoo last week was especially memorable. He patiently and attentively looked at every zoo exhibit. He willingly shared a soda and pretzel with his little brother. When it was time to leave the geyser that sprayed up water (his favorite) he did not even grunt in disapproval. Four years ago I would have been chasing him through Washington Park the entire day. Two years ago (or even last year) he would have tantrumed at the water geyser until I threw him over my shoulder and carried him away. We've come a long way, baby!
I love his new-found sense of humor. When we went swimming over vacation, I kept throwing Noe into the deep end of water, much to his delight. After deciding to take a break from our little game, I felt little hands pushing me from behind into the pool water. Noe had pushed me into the pool! It was epic!
As my friend Ami wisely observed.... Noe just does what everyone else WANTS to do. Like sitting down at a strange family's picnic table at the park until they hesitantly but graciously served him a plate of rice and chicken (mommy fail...I thought he was at the splash pad with the other kids), or ripping off his swim trunks to run into the ocean waves, or eating around the layers of cake to get to all the frosting.
When Noe was diagnosed with autism, I can't honestly say this is how I wanted things to turn out seven years later. I held grand delusions that once we had proper therapies in place, Noe would be able to shed much or all of his autism. It would have been crushing for me to know back then that as a fourth grader, Noe would still have very limited verbal skills and spend most of his school day in a self-contained autism classroom.
But I don't feel crushed. He continues to learn and progress with the help of truly talented autism therapy professionals and a caring school community. They echo what Noe's father and I have always believed.... Noe has a bright future ahead of him.
And I'm pretty thrilled to be along for the ride.
As long as he is well-fed and well-rested, Noe is tons of fun. We play board games like Perfection and Jenga. He is always first out the door to hike or bike or go to the pool. He is the only one who will willingly keep me company on a trip to the grocery store. Our day-long trip to the Portland Zoo last week was especially memorable. He patiently and attentively looked at every zoo exhibit. He willingly shared a soda and pretzel with his little brother. When it was time to leave the geyser that sprayed up water (his favorite) he did not even grunt in disapproval. Four years ago I would have been chasing him through Washington Park the entire day. Two years ago (or even last year) he would have tantrumed at the water geyser until I threw him over my shoulder and carried him away. We've come a long way, baby!
As my friend Ami wisely observed.... Noe just does what everyone else WANTS to do. Like sitting down at a strange family's picnic table at the park until they hesitantly but graciously served him a plate of rice and chicken (mommy fail...I thought he was at the splash pad with the other kids), or ripping off his swim trunks to run into the ocean waves, or eating around the layers of cake to get to all the frosting.
When Noe was diagnosed with autism, I can't honestly say this is how I wanted things to turn out seven years later. I held grand delusions that once we had proper therapies in place, Noe would be able to shed much or all of his autism. It would have been crushing for me to know back then that as a fourth grader, Noe would still have very limited verbal skills and spend most of his school day in a self-contained autism classroom.
But I don't feel crushed. He continues to learn and progress with the help of truly talented autism therapy professionals and a caring school community. They echo what Noe's father and I have always believed.... Noe has a bright future ahead of him.
And I'm pretty thrilled to be along for the ride.
3 comments:
Jen, I love knowing more about Noe. What a cool kid! Pushing you in the pool is hilarious. And I'm curious, how far do you guys run together. That is really neat, too, and I love that you run thru puddles w/ him, and hold hands. You're an amazing, inspiring mom.
Dear Jen,
I'm not sure who I admire more, you or Noe. You are both champions and truly raising the bar for the IDEAL American family. To recognize that you have a treasure in this relationship with a son that struggles to translate, is astute. It sounds like you are living life and not some wack-a-doodle reality show. Well done Jen,Noe,Ed and Asher. You are the dream.
This post made me cry. You know I have a brother with major special needs, so this hits home for me. The sister-brother relationship is much different than that of a mother-son, but it is on the same spectrum. I love how you write about Noe. Your devotion and pride shine through, and that is how it should be. Too many people think Autism is a death sentence, and that is far from the truth. You demonstrate that more clearly than anyone I know. Thank you.
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